Speaking on BBC Scotland (Radio)

Facebook's announce Tribute's feature

Yesterday our founder spoken on BBC Scotland about the importance of planning for death. He also spoke about what social media and other technology companies are doing in relation to their own end of life policies and procedures.

The audio snippet below is of James speaking about Facebook's upcoming 'Tributes' feature and what the changes may be for Facebook users worldwide.

 


Digital Legacy Conference

Digital Legacy Conference & EAPC 2019

Speaking at the Digital Legacy Conference

We will be speaking at the annual Digital Legacy Conference the 16th World Congress of the European Association of Palliative Care in Berlin.

The Internet has changed many aspects of our lives. It has also changed the ways in which we view death, dying and bereavement and how we remember those close to us. This year, the 16th World Congress of the European Association of Palliative Care will welcome the Digital Legacy Conference.

 

Digital Legacy Conference

This annual conference addresses death and dying in today’s digital world. The conference will be free to all congress delegates and will take place on Friday 24 May in Estrel B with the reception starting from 18:15 ahead of a prompt 18:30 start.

Tickets can be reserved at https://digitallegacyconference.com

 


Hospice UK

What to do if someone close to you is diagnosed with a terminal illness

What's next?

Hospice UK have published a short video highlighting the two actions that you should follow if someone close to you is diagnosed with a terminal illness.

 

Charities and resources providing further support

There are a range of national and local services able to provide you with advice and support. Some of the main charities able to provide support are listed below. You may also want to find reach out to a charity, hospice or support network close to where you live. You may also find value in speaking with a charity who provides support to the general public around any specific conditions that you may be diagnosed with.

 


Grieving in a digital world (video)

How the internet is changing the way we grieve

A video about grieving in today's digital world features MyWishes. It was recently released following the Digital Legacy Conference in Siena College, New York last year.

The video explores how the internet is changing the ways in which society remembers and grieves for our loved ones.

 

For more information about the Digital Legacy Conference visit: http://DigitalLegacyConference.com 

Survey Data

Each year the digital death survey is conducted. It explores and examines societies sentiment and behaviours around death and dying in relation to the internet.

Digital Death Survey

 

According to the Digital Death Survey, the importance society places on being able to "view" social media accounts of the deceased appears to be increasing year on year.


Professor Green

Professor Green speaks about the importance of photographs and bereavement

Professor Green recently spoke to the BBC about power of photographs and their significance after someone we care about dies. Professor Green then explores how society and our relationship with photography has changed due to the birth of the internet and social media sites (like Facebook, Instagram and Twitter)


MySpace

MySpace loses all content uploaded before 2016

This recent data loss has once again highlighted why it is important to backup the photos and videos we upload online. In the coming weeks both Google+ and Flickr will be taking down media and removing it off the internet. Whichever online and social media accounts you use to store and save content on please ensure that you backup your media.


Russell Brand death

Russell Brand addresses grief

Russell Brand has has addressed many social and economical aspects of life and society over the years in both his standup comedy shows, his Youtube channel and podcasts. It is great that Russell has addressed 'Dealing With Grief' in this short video.

We would love to watch more videos by Russell Brand that address death, dying and bereavement. Good work Russell!


Stan Lee's final tweet

Stan Lee's final Tweet

Stan Lee (28th December, 1922 – 12th November, 2018) was an American comic book writer, editor, publisher, and producer. He  is known for being the leader and face of Marvel Comics responsible for many superhero films and cartoons ranging from Spider Man and the Hulk to Black Panther and X-Men.

Stan Lee's final tweet appears to be pre-planned and simple yet true to the person he was. Stan Lee's legacy in both life and death continues.

 


Wendy

What is a celebrant?

We recently spoke about end of life planning and MyWishes at the annual Celebrants Convention. Whilst there we caught up with Wendy Coulton a fully qualified Civil Funeral Celebrant.

In the video below Wendy Coulton explains what a celebrant is and how a celebrant helps support the recently bereaved when arranging a funeral service.

To document your funeral wishes (for free) and pass them on to you next of kin visit www.MyWishes.co.uk.


How technology has changed my life as a ‘End of Life' Doctor

Dr Ollie MontonDr Ollie Minton

 

Hello my name is Ollie Minton…

I love my phone / my iPad and they are essential parts of life. It is not the clichéd work life balance more like a detachable cyborg component – I am not ready for any implanted chips.

My digital footprint is enormous (well I have fun using twitter). I find my work IT much less enjoyable naturally as the NHS is reliant on pagers and faxes and slow computers. So it is hard to see how ‘singularity’ (the merger of humans and machine) is going to affect my work as an end of life doctor.

There isn’t going to be a blood test (Daily Mail style) or indeed any sort of algorithm that’s going to accurately tell you how long you might live for….  and *spoiler alert* there is no miracle cure for mortality so while it may be a long way off death is inevitable.

“There is still a 100% morality rate in humans”

 

We tend to react to celebrity deaths and mourn publicly much more but usually this is many degrees of separation.  Facebook memorials , tweets and the like but this doesn’t mean anyone does anything practical for themselves which is a shame to my mind professionally.

I can’t tell people to have feelings or to talk about things any more than you can be persuaded to see a doctor or tell them some theoretical circumstances that might lead to your demise and what you’d like to happen.

I can tell you that most doctors do everything they can to keep you alive which is great and makes my job all the harder as I meet people in who that’s not gonna work.

There are lots of myths to be debunked – the internet does not provide a sense filter – but there is no magic bullet out there. “The machine that goes Ping” is a comic take on this subject matter

but if you get that far it’s much better to have something written down in advance or at least an emergency contact on your phone who knows how you think.

We all do sadly have to die of something (or lots of things as we get older) barring accidents and anything self inflicted and even then please please ask for help. Look

Dr Google is both your friend and enemy but if you live in England and are in doubt start at NHS choices https://www.nhs.uk

The adage goes that rare things are rare and common things are common – one in two of us will die from cancer or heart disease, no one lives forever and by 70 + even if you currently feel invincible (or at least not hungover or knackered) you’ll have had something go wrong.

I have written my Last Will and Testament and stated what I would like to happen to my digital estate. I also registe as an organ donor and have an organ donation card. I have also clearly expressed that if I am unable to speak for myself I would not want to live in a vegetative state. Image result for roll dice .gifMy advise to everyone would be to make plans for you and your loved ones… then roll the dice and may the odds forever be in your favour.

Dr Ollie Minton PhD FRCP FHEA.  Macmillan consultant in palliative medicine. Brighton and Sussex University Hospitals NHS Trust.

Other news that might be of interest

Learn how to make plans for yourself and those you care about

MyWishes free to use software was developed under the guidance of healthcare, hospice, legal and funeral professionals. Our platforms empowers society to make plans for both themselves and those they care about.

MyWishes
Michael Sobell Hospice 
Palliative Care Department
Mount Vernon Hospital, Gate 3
Northwood HA6 2RN
United Kingdom
(Map)

Sharing is caring…