How I Want To Go

South Staffordshire Action Alliance - How I Want To Go

How I want to Go

 

We are delighted to announce that we will be supporting the 'How I Want To Go' campaign across South Staffordshire. The campaign is being ran by The Staffordshire Action Alliance and MyWishes will be providing the online platform for those wanting to document their wishes online.

 

How I Want To Go

 

The Staffordshire Action Alliance are a group of voluntary organisations who have come together based on a shared interest in End of Life issues. The Alliance prioritised care plans as an area of work to focus on. It is recognised that having a care plan in place can improve dialogue around issues relating to end of life care, reduce crises admissions and increase the likelihood of peoples wishes being adhered to.

“The My Wishes care plan includes information about you as a person, from favourite foods and movies to the important people who should be involved in decisions about your health if you cannot speak for yourself. Anyone can log onto the site and complete the form and even print off a copy to file with their will, Lasting Power of Attorney or other important documents for the future.” - Ian Leech (Alliance spokesman and lead coach).

As part of the project, which is funded by NHS England, if participants agree, the care plans will be shared with a senior nurse at St Giles Hospice, an alliance member. Further details can be found here

 

How I want to Go - MyWishes

'How I Want To Go' was created to make areas around end of life planning more accessible. A number of workshops, training seminars and public engagement activities will take place across Staffordshire in the coming months.

 

If you live in South Staffordshire register by visiting www.mywishes.co.uk/southstaffs

 


New CNN documentary on digital death and digital legacy

We were recently visited by a camera crew from CNN in the USA for a documentary. It explores different options and approaches to death in today's digital world. Some of these are more based on fantasy whilst others are more based in reality. We were filmed by Laurie and the crew in the beautiful and historic Highgate Cemetery in London.

 

To register for a free MyWishes account click here


DeadSocial

DeadSocial's digital legacy tool and resource hub is evolving

DeadSocial is evolving

DeadSocial will soon be rebranded and relaunched as 'MyWishes'. We are busy working on the next version of DeadSocial. We have been working very, very hard and think that you are going to love it. Once it is live we will allow another 10,000 users to use the service for free. Until the next version is ready in June feel free to view learn more about our free service and our story...

 

How DeadSocial works

Visit our resources

Please feel free to read thought our visit our resourcesHere you will find information on how the internet is changing death and bereavement. Our free to access tutorials range from how to prepare for death in today's digital world to how to use the internet to arrange a funeral..

 

Screen Shot 2017 02 06 at 17.55.17

 

What kind of messages will Queen Latifa leave to the world?...


fantasy football

New Book Contribution: A matter of life and death

‘I rejoice that death has become less of a taboo subject in our conversations. In this timely book you will discover precious wisdom and heartfelt insights from people of all walks of life…As I have listened to these voices, I have found reassurance and enlightenment. I know this book will offer the same gifts to you whether you believe in a transition to a new life or contemplate the beyond with some uncertainty. I commend it highly.’ – from the foreword by Archbishop Emeritus Desmond Tutu

Contributors from all walks of life share their thoughts on carefully selected writings, images and artwork that most accurately express death to them. Describing their unique experiences, they reveal that, beyond the heartache and the mystery, death teaches us all invaluable lessons about how we live our lives. Offering comfort, reassurance and varied insights into death, loss and its impact on life, this collection is for anyone who might be coming to terms with this inevitable destination. Royalty proceeds from the book will be donated to Ashgate Hospicecare, North Derbyshire, UK.

Last year James Norris (MyWishes's founder) was asked by the author to contribute some of his experiences on death. James decided to speak about his good friend and former university housemate Ben Birch who died of Sudden Adult Death Syndrome (S.A.D.S) in 2013.

Ben (above – being carried, thumb placed in mouth) was an avid football fan. He also played Fantasy Football (a online football game) each week during the football season. After Ben’s death a mutual friend from University called Andrew Hadley (above holding Ben) created a memorial league in Ben’s honour.

fantasy footballJames’ contribution revolves around the personal value he places on this league. A matter of life and death will go on sale on the 18th August 2016. You can preorder you copy on Amazon here.


buzzfeed

DeadSocial featured in Buzzfeed

BuzzFeed Logo

 

Buzzfeed's recent lighthearted video approaches death and being able to say goodbye to loved ones online.

 

"Use an account like DeadSocial where you store messages and photos that will be posted after death in intervals... - Buzzfeed.

 

MyWishes (formally DeadSocial) empowers our users to leave goodbye message for publication after their death

 

 


hospice streaming

Streaming Pantomime to Hospices at Christmas

Overview

DeadSocial (now called MyWishes) devised and supported an initiative to video stream the pantomime ‘Cinderella’ from the Broadway Barking theatre to a range of hospices across the UK at Christmas.

An access code for the live video stream was generated and provided to 12 hospices across the UK. As well as being aired on TVs and large screens in hospices it was also provided to patients and their families to enable viewing on laptops, tablets, mobile phones etc. It was supported by Together for Short Lives and promoted by Help the Hospices. The initial announcement about our initiative can be found on the Together for Short Lives website.

 

Cinderella

 

The purpose of this project was to bring the joy and tradition associated with ‘the Christmas pantomime’ to all not matter what their circumstances. It was carried out for free with the kind support of volunteers and hospice staff across the UK. The stream was made available for free to as many hospices, patients and their families as possible.


The LivInfographic

Livinfographic

Overview

Over the last few years Infographics have become an extremely effective way to tell stories using data. Infographics are (in short) graphical representations of datasets. They are often focused around one or more pieces of data and provide insights into a specific subject matter.

The concept

To build an Infographic installation that lives in a physical space and uses real-time data to change it over time.

The outcome

Their visual and narrative nature have helped make a lot of information more appealing to the general public and (when telling a good story) can appeal to almost every demographic. For Dying Matters Awareness Week we launched and built an art installation called the #LivINFOGRAPHIC (living-Infographic). The LivINFOGRAPHIC lived within a physical space and used data that was being attained to alter it accordingly.

The LivINFOGRAPHIC was visited by many during it’s lifespan in the ‘You Only Die Once’ Popup Shop’ (69 Camden High Street, London). We took data from the ‘Digital Death Survey’ and updated it over the week.  The installation was sat on 3 metres x 2 metres of real turf (grass) and lived and breathed over this period.

The data was attained and then updated (in near real-time). Although the installation has now been dismantled the ‘Digital Death Survey’ was live for four weeks. The results from the data provided can be found here.

This survey asks questions about end of life matters in relation to our online accounts and in today’s digitally connected society. The installation’s concept was devised by James Norris (founder of MyWishes) and the set was built with the help of the installation and performance artist, Natalie Jackson.

The LivInfographic was just one of many initiatives and events hosted in the ‘You Only Die Once’ Pop-Up shop’ for Dying Matters Awareness Week. These included workshops, Death Cafes, live music, poetry, photography and art. Organisations involved ranged from the NHS and The Good Funeral Guide to CALM and Save the Male.

Popup shop